AoE Live Webinar Series (2026-2027)

Areas of Excellence (AoE)

Live Webinar Series (2026-2027)

Use data to transform diabetes care and patient lives

 

Hosting organization*

Hong Kong Institute of Diabetes and Obesity

The Chinese University of Hong Kong (CUHK)

Hong Kong

Preamble

  • Diabetes is the leading cause of cardiovascular and kidney disease with cancer emerging as a leading cause of death in people with diabetes. Globally, 500 million people are living with diabetes, the majority of whom are undiagnosed, untreated or uncontrolled.
  • The increasing trend of diabetes in young people will have major impacts on the affected person, his/her family and the economy. The causes of diabetes are complex but early detection and intervention can transform a person’s life. Yet, despite the many advances in therapeutics and technologies, there is no sign of slowing down of this global epidemic.
  • Diabetes is silent, heterogeneous and progressive. The numerical nature of the definition of diabetes and its many risk factors and complications make regular measurement imperative to guide decision-making in order to prevent the preventable.
  • In the Lancet Commission Report on diabetes published in 2020, 44 global experts advocate the use of data to close gaps in prevention, care and professional knowledge using a societal-community-personalized approach.
  • Establishing a diabetes register is the first step to build a multidisciplinary team aimed at gathering data systematically to identify care gaps, translate evidence to practice and discover knowledge relevant to the population and context.
  • This structured data collection with real-time feedback to the patient and providers will transform care while the aggregate register data will align all parties including payors regarding the value of this data-driven care model.

AoE Webinar Series

  • In this series of webinars supported by the Areas of Excellence Scheme (AoE) of the Hong Kong Government Research Grant Committee led by Professors Ronald CW MA and Juliana CN CHAN of the CUHK, we have invited global experts to deliver 12 monthly webinars in pursuit of the vision of the Lancet Commission Report on diabetes.

Vision

  • Use data to transform diabetes care and save patient lives

Learning objectives

  • Understand what, why, how, by whom and for whom of setting up diabetes registers
  • Set up a network of collaborators to establish a multicounty JADE Register with automatic data anonymization, using common protocol to gather real world evidence, share best practices and improve quality of care
  • Enable researchers and care providers to work collectively to define the clinical profiles of their population, benchmark their care performance, establish biobanks and implement pragmatic clinical studies to address unmet needs

 

Format

  • Monthly 1-hour webinar where global leaders and experts in biomedical-psychosocial-behavioral science will share the latest knowledge in epidemiology, diagnosis, prevention and treatment from early to late stage of diabetes
  • Sharing of the data-driven care and research model including the implementation of the JADE Program initiated at the CUHK-Prince of Wales Hospital (PWH) Diabetes Centre, an International Diabetes Federation (IDF) Centre of Excellence in Diabetes Care
  • Participants who are interested in setting up the JADE Register at their institution can set up collaboration with the hosting institution with access to the portal for a trial period to explore feasibility

The JADE Register – past, present and future

  • In 1995, inspired by the IDF St Vincent Declaration of advocating the use of diabetes centre, diabetes team and diabetes register to improve quality of diabetes care as well the benefits of protocol-driven care using case report form, coordinated by a study nurse, in a clinical trial setting, the CUHK-PWH Diabetes and Care Team, changed the care setting, workflow and team structure to set up the Hong Kong Diabetes Register (HKDR) as a data-driven quality improvement program.
  • In 2000, the HKDR protocol was adopted by the Hong Kong Hospital Authority which sets up diabetes centres and created career paths for diabetes nurses to implement a hospital-based risk assessment and empowerment program which expanded into the primary care setting benefiting over 600,000 patients with diabetes and contribute towards the 70% reduction in death rate amongst people with diabetes in Hong Kong from 3% per year in 2000 to 1.3% per year in 2016
  • In 2007, the HKDR protocol was digitalized to become the first web-based Joint Asia Diabetes Evaluation (JADE) Program with participation of 300 healthcare professionals and recruitment of 120,000 patients from eleven countries to define the landscape of diabetes care in Asia and confirms the benefits of this technologically-enabled data-drive care model in reducing all risk factors, empowering self-management and improving clinical outcomes.

Acknowledgement of the Hong Kong Research Grants Council Areas of Excellence Scheme on Diabetes (AoE/M-401/24-R).

 References 

  1. Weddell JM. Registers and registries: a review. International journal of epidemiology 1973; 2(3): 221–8.
  2. Piwernetz K, Home PD, Snorgaard O, Antsiferov M, Staehr-Johansen K, Krans M. Monitoring the targets of the St Vincent Declaration and the implementation of quality management in diabetes care: the DIABCARE initiative. The DIABCARE Monitoring Group of the St Vincent Declaration Steering Committee. Diabetic medicine 1993; 10(4): 371–7.
  3. Ko GT, So WY, Tong PC, et al. From design to implementation–the Joint Asia Diabetes Evaluation (JADE) program: a descriptive report of an electronic web-based diabetes management program. BMC medical informatics and decision making 2010; 10: 26.
  4. Chan JCN, Lim LL, Luk AOY, et al. From Hong Kong Diabetes Register to JADE Program to RAMP-DM for Data-Driven Actions. Diabetes care 2019; 42(11): 2022–31.
  5. Chan JCN, Lim LL, Wareham NJ, et al. The Lancet Commission on diabetes: using data to transform diabetes care and patient lives. Lancet 2021; 396(10267): 2019–82.
  6. Lim LL, Lau ESH, Fu AWC, et al. Effects of a Technology-Assisted Integrated Diabetes Care Program on Cardiometabolic Risk Factors Among Patients With Type 2 Diabetes in the Asia-Pacific Region: The JADE Program Randomized Clinical Trial. JAMA Netw Open 2021; 4(4): e217557.
  7. Magliano DJ, Chen L, Carstensen B, et al. Trends in all-cause mortality among people with diagnosed diabetes in high-income settings: a multicountry analysis of aggregate data. The lancet Diabetes & endocrinology 2022; 10(2): 112–9.
  8. Doherty DA, Tong SYC, Reilly J, et al. Registry randomised trials: a methodological perspective. BMJ open 2023; 13(3): e068057.
  9. Chan JCN, Cheung M, Luk AOY, et al. A 30-year case study of local implementation of global guidelines for data-driven diabetes management starting with the Hong Kong Diabetes Register. Lancet Reg Health West Pac 2025; 56: 101505.
  10. Chan JCN. Redefining Diabetes and Creating Solutions—The Hong Kong Diabetes Register: Kelly West Award Lecture 2025. Diabetes care 2026; 49(4): 544–58.
  11. Mathieu C, Del Prato S. Diabetes registries: key enablers of high-quality care. The Lancet Regional Health – Europe 2025; 56
  12. Lau ESH, Luk AOY, Lim L-L, et al. Development and Validation of the Patient-Level Chinese Diabetes Outcome Model on Long-term Complications in Type 2 Diabetes: An Application of the Hong Kong Diabetes Register. Diabetes care 2025; 48(4): 579–87
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